ason has been staying with us this weekend – lovely to hang out with him, as always, and even lovelier to benefit from his fantastic photography skills.

Cardiac update

e got a double rainbow at our house last Thursday evening. While we didn’t get as freaky as that guy about it, it certainly seemed a good omen for the Cardiac Starship Clinic the next morning. Wrigglesworth went in for a echocardiogram, an electrocardiogram and a chest x-ray and then we met with the cardiologist to discuss them. Wriggy is looking “tremendous” for his condition and they think it will be at least six more months before his open-heart surgery. Awesome news. His pulmonary stenosis has gotten more severe though, so just about all the blood flow to his lungs is via his shunt now. This is totally fine and dandy, as long as he catches no bugs. If he did, the shunt could potentially get blocked but  this is pretty uncommon so all in all we are pleased as punch. AND, as it is time to start solids, we hope we can get rid of the nose hose soon and get all his extra calories into him by secretly putting oil and avocado into everything.

He seems quite pleased with it so far.

Now we are six (months)

ur Wrigglesworth turned six months on Tuesday. Wowzers! Queue the usual sentence about how time flies and how quickly they change. 

Every heart has a story – and this is his.

I have recently linked to this blog entry for the Faces of CHD on Pinterest. If you are over here because of that, welcome. This entry is a bit out of date, but tells the longer story of what happened in the first six months of our boy’s life. We’ve come a long way since this was written – still awaiting open-heart surgery, and still with an NG tube, but our boy is rocking it nonetheless.

tefenie at When life hands you a broken heart is holding the second annual “Every Heart has a Story” Blog Event. Congenital Heart Defect (CHD) families share their stories, and links to their blogs so that connections can be made between families and experiences. I know over the past months,  I have benefited from reading other CHD stories, so thought we should share our story too.  For friends and family, this will be nothing new. Here is a summary of our story so far….

We are pretty darn new to this CHD journey. As I write this, only six months in,  I am keenly aware that a lot of Mr Wrigglesworth’s heart story is yet to be told.

My pregnancy with Albie was so full of wonder and anticipation. I was desperately excited about being pregnant and I revelled in all the womanly glory of carrying our first baby – even the morning sickness which lasted most of the pregnancy!  I had all the scans, ate good food – everything was normal.

Literacy Level 0.01

ere is Albie achieving Literacy Level 0.01 – which is indecipherable babbling accompanied by random turning of pages. As an aside, this video also is evidence of me achieving my Mumma Level 2.5 – crazy tone of voice when communicating with child. Crikey, I sound ridiculous.

 

Early eighties child

y penchant for the retro and the vintage hit new highs this morning. Witness the Wrigglesworth kitted out in eighties knits. He kind of looks like a grid iron player – could be the shoulders and the knitted helmet? Brilliant result if you ask me.

Happy Birthday Granddad!

appy Birthday Granddad!

I hope today is a lovely day for you, that the mountain is covered in snow and the sun is shining. Sorry we aren’t there to hang out. I can’t wait to see you again, hopefully soon,

Much love, your youngest grandson, Mister Wrigglesworth.

Fat Albert II

beautiful sight this morning at his weekly weigh in. 5.18 kgs, or to our UK family and friends, 11.4 pounds. He did slide in at just over five kilos last week but I didnt really believe it. This week I do! The kilo milestones are awesome and I love that they are getting closer together too! Can’t wait for the release of Fat Albert III

We suspected he was fatter whilst bathing him so we took this video. Yeah, that’s Marcus and me, shamelessly documenting his new level of fat on both photo and video format. Hehehe