Special Needs Spotlight
I am a little behind the eight-ball on this one but I’d better fill you in nonetheless. This Little Miggy Stayed Home is a fantastic blog from a fantastic lady. Each Friday, she… Read More
Category Archive: Heart condition
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Beads of Courage
Ages ago, I read about Beads of Courage. Its a programme in the States by which a child with a serious illness gets a coloured bead for each medical intervention. They are then… Read More
The best Christmas present
Here he is. One healthy full-o-beans toddler. He has been super well for a while now, but we got the big tick from Starship last week, and boy does it feel good. He… Read More
This is what they said..
A beautiful video, of parents of children with disabilities, imagining what they would have told themselves on the day of their child’s diagnosis. For all parents of children with disabilities here – I… Read More
There and back again
Four weeks ago tomorrow, our boy went into open heart surgery and began a battle for his life. A quick and fierce battle it turned out to be, because here we are now… Read More
Cardiac Update
So we had a hospital appointment last Wednesday, the outcome of which I have been loath to write about. Hence, the updated header and layout, which I hope you like. I was aiming… Read More
The many faces of CHD
Its Congenital Heart Defect Awareness Week in the States from the 7-12th February and CHD Awareness Day right here in New Zealand on Valentines Day. On Pinterest, which is an online pinboard for… Read More
The Rastelli repair
Update: Albie didn’t get his Rastelli the next week as was planned when this was written. We went home again to make him bigger and he ended up having his operation on 14… Read More
The heart of the matter
After a bundle of scans and tests, its been decided. Wednesday 28 December is to be the date for Albie’s Rastelli operation. The surgeons would have liked Albie to be bigger than he… Read More
