Back to the Mother ship

We are back at Starship. Marcus noticed Mr Wrigglesworth was looking blue last Sunday afternoon, and when we got to the hospital his saturation levels were down around 60%. After a short stay in Wellington hospital, we were flown up to Starship in the early hours of Monday morning.

It seems Wrigglesworth’s pulmonary stenosis is getting more pronounced as his heart grows. On Thursday, they did an operation to enlarge his pulmonary valve to increase blood flow. They did this successfully, which we were quite heartened by to begin with. The stink thing is that the pulmonary artery leading up to the valve is also narrowing. This has meant that the operation hasn’t really had much of an impact on his oxygen levels at all.

So our little Wrigglesworth is going to have to have a much more serious operation early next week to get more oxygenated blood around his wee body. The team here is still deciding whether it will be open heart surgery or whether they can just put a shunt in outside the heart itself. Its upsetting to think of our lil guy having to have another operation so soon. At the same time, we want him to get better so we have to trust that is where we are heading – even if we are heading that way slowly!

After the operation he will be back in Intensive Care. This is what I dread the most as it means that we can visit but not stay with him, he will be  intubated and will be fed via a nasal tube as well. Its perhaps even harder to do this the second time around knowing, just a little, of what normality feels like.

This song is being listened to too much right now. Oh to be home with our wee boy well!

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