Category Archive: CHD community

CHD Week: What to ask at the twenty week scan.

I have a few regrets. And this is one. At our twenty week scan with Albie, we didn’t want to know if it was a boy or a girl, we just wanted to know… Continue reading

CHD Week: This heart-shaped blog.

I remember when Albie was young, spending ages online reading other families experiences, trying to catch a glimpse of what might lie ahead for us. In the end, everyone’s journey is their own,… Continue reading

A CHD blog link-up

So to celebrate International Congenital Heart Defect Awareness Week (7 – 14 February 2014) I thought it’d be great to co-ordinate a CHD blog link-up right here on Dear Albie. Whether you have… Continue reading

How expecting a healthy baby after a medically fragile one is as scary as it is awesome

“The most important things are the hardest to say. They are the things you get ashamed of, because words diminish them — words shrink things that seemed limitless when they were in your… Continue reading

Heart Brothers

One of the most unexpected and welcomed consequences of writing so openly about our journey, has been the connections we have made with other heart families, both here in New Zealand and all… Continue reading

Shaking the virtual bucket for heart kids

Its @ Heart Awareness Week next week, and we are helping to raise money for this awesome charity. @Heart is the only charity that supports Kiwi children and families affected by CHD, right through… Continue reading

Special Needs Spotlight

This Little Miggy Stayed Home is a fantastic blog from a fantastic lady. Each Friday, she spotlights a child with special needs and (you can probably guess where I am headed here), last… Continue reading

Making our own Beads of Courage

Ages ago, I read about Beads of Courage. Its a programme in the States by which a child with a serious illness gets a coloured bead for each medical intervention. They are then… Continue reading

This is what they said..

A beautiful video, of parents of children with disabilities, imagining what they would have told themselves on the day of their child’s diagnosis. For all parents of children with disabilities here – I… Continue reading

A special delivery

And one afternoon the week before last, a parcel arrived in our letterbox. Gifts for Marcus and me and Albie from a family we have not even met. That in itself would have… Continue reading