CHD Week: This heart-shaped blog.

I remember when Albie was young, spending ages online reading other families experiences, trying to catch a glimpse of what might lie ahead for us. In the end, everyone’s journey is their own,… Continue reading


We went to a corner of Northwest Wales for six nights over New Years. We booked a cottage from a lovely lady called Fran by using airbnb. Is it just me or does this… Continue reading

The Yuletide Log

And so, to Christmas. Albie was beyond excited about Christmas this year. He knew the Nativity Story, some carols, had a  wish list of presents and a myriad of logistical questions about Santa… Continue reading


21 December Sunrise: 8:25am Sunset: 3:53pm I know it’s not Alaska, or Scandinavia, but boy is it dark and cold right about now. I must have lived this when I was a twenty something… Continue reading

Dear Dennis

We took this photo of you when we visited the UK on holiday last April. You’d just been ill in hospital with a chest infection but had recovered some and we all went… Continue reading

Albie’s heart

I remember in the midst of when Albie was a baby, and he had his NG tube in, and his sweats, and his medications, and his physical therapy and his weigh-ins and his… Continue reading

Freddy Pops

And suddenly, in photos like these, I can catch a small glimpse of the boy our baby is growing into.

Hill and Dale

Another pretty, pretty walk. This time on the Yorkshire Dales, which are about an hours drive from our place. Steve and Louise, and their little-dog-who-could, Tenga, showed us along a hillside beneath an… Continue reading

Tricks and Treats

Sunrise: 7:28 AM Sunset: 4:18 PM Boy, is it getting dark around these parts. It is a treat to see the seasons turn so markedly. Autumn has brought great flurries of leaves down. Coloured… Continue reading

View from the top

These photos are from another trip up Pendle Hill, this time starting from the other side in Barley. Albie walked the lions share of the way up and all the way down. Freddy… Continue reading